still no bo

i think i mentioned recently that my botox appointment was finally made. the receptionist, on the evening she called, asked if i could come in next Thursday (can you see where i'm going with this?...) and i said sure. so on thursday i took my neighbor some dinner, the one i traded cleaning my basement for making her dinners, then went to show papa d a project i've been working on.

when i got home, the receptionist had left a message which said, "I'm calling in regards to your botox appt. that you missed." Yup, you heard right....MISSED!

so i called back to reschedule and a different lady told me that the secretary would call me back. that was last thursday, today is tuesday. still no call back. surprised? absolutely not!

so today i called. i was dreading that because i knew EXACTLY how the conversation was going to unfold and i did NOT want to deal with it. however, there's no one to take care of me but me, so i did.

I was told that the doctor scheduled special sessions for botox and they did not know when he'd be doing it again. they would call me when he set up those days again.

I said, do you think it will be this month?

I don't know, she said.

Like i'm supposed to be satisified with that answer?! yah, right.

allright i said sweetly through gritted teeth.

*curse words racing through my brain...

i will not be trapped by these so called health care professionals. i'm not just going to suck up to their "we'll get to you when we get to you" type attitude. nope! not anymore.

so i sent an e-mail to the new guy i'm seeing and told them that there'd been a "misunderstanding" and that i missed my appt. i said it took me 2 1/2 mos. to get it and after calling 2x, i still did not have a reschedule and they were giving me no indication when they would.

within a few hours he e-mailed back and i am getting a new referral to someone else. i have no gauruntees when they will get me in but I DO NOT CARE. i will never do business with this other clinic again, and i will let anyone and everyone i know to do the same.

hallelujah!

sometimes you have to push your weight around to get the ball moving...

hallelujah! Dr. J (the PC) just sent me an e-mail and said i could go to portland, or salem, my pick. just call and make the appointment. i was like....what? that was so easy!!

(that "it's OK" mantra i've been repeating to myself for days now was really true!)

*seriously, i was having so much anxiety about this on friday that i did this! positive self-talk...*

anyway, i called salem and evidentally there is no "headache clinic" as such, but a physician's assistant who deals primarly with headache/migraine just like dr. j had said.

guess when i'm going?

september 27th! and i don't have to go to salem, just to tualitain, but i'll have to get up realllllllyyyyy early. hopefully papa d will take the day off work and go with me, and maybe the kids can spend the night somewhere so they can get off to school. i know my parents and friends will help, this is a really big deal.

so wahoo! i am going to the obgyn this week to get her advice on what to do for the menstrual migraines. i'm telling her that i'm not doing anything until i see the PA. they can talk to each other if they want, and i see the new psych on the 28th to talk about the lamictal. hopefully all three of them will talk to each other. we'll see what the PA says about the botox since i still haven't gotten it and still don't even have an appointment.

oh man, i feel like a big weight has lifted off me. even though i always start off hopeful with a new doctor (even though most times it ends up being disappoiting) i think this is a big step. if he can't help me, they are going to have to step it up to another level and send me to the oregon health sciences university or something....aren't i so special?! *i don't wanna be special....

keep fingers crossed for me, prayers up, attitudes positive, etc. i say this to myself as well.

little update

I've been waiting for my secure password to come in the mail from my health insurance company and yesterday it arrived. wahoo!

I e-mailed my pc about the neurologist dillema and asked for him to refer me to the headache clinic 3 hrs. away and in the meantime, while i'm waiting for the appointment, to let me go to a different neurologist to do the botox.

wish me luck!

there is absolutely no reason that he should say no to me. i think he's great, and am sure there won't be a problem.

but....

*(because there's always a but)

but....if he says no, well then i'll see if that quick care dr. is taking new patients and see her. if i can't i'll ask her who to see and see that person.

thanks for your support everyone!

yesterday i had a pretty bad headache all day. i took some meds for it and it just wasn't doing much for me. but i started applying some of the things i've been learning in the pain clinic. it seemed like i was "managing" myself all day, but it kept the pain to a tolerable level, and when it got bad, and i implimented something i learned, it simmered down for a while.

these tools didn't fix me, but they sure helped me cope. i have a feeling i might have ended up in quick care again if i hadn't tried some of these things.

i used ice for 10-15 min. at a time, waited an hour, then reapplied.

i used tiger balm, like stinking all day, and am sure smelt quite like a tiger by the evening.

i used guided imagery about 5x for 20 min. sessions each. this helped a lot and i think was the biggest help to me of the day.

i started my day off with fresh air and walk even though i was hurting.

i tried deep breathing about as many times as i could remember to do it.

the worst thing for me was going to pick up tse from school and running two errands. i knew i shouldn't do it, but did it anyway. i had been able to keep the pain down, but by the last stop, it really started to skyrocket and was much harder to manage after that.

guess i shouldn't let any reason be an excuse to overdo it on days like that. it's just that, sometimes, maybe it's pride, but you want to be like those people who just push through things and get things done. but it sure wasn't smart for me yesterday, and none of the reasons were good enough to do what it ended up doing to me.

lessons learned~

o.k., so i haven't posted in a while...

well, doesn't seem like anyone reads this anymore. maybe 'cause i haven't been good about checking anyone else's blog.

i've just been spending the bulk of my time on photography...surprise anyone?!

so, i haven't posted in a while. want to know why that is?

well, last friday i saw the neurologist. the one i'm waiting on for botox. the one i've waited 3 mos. to see. guess how long he spent talking to me?...

you probably guessed right...less than ten minutes. i was so shocked when he got up and shook my hand that i let him just walk right out of the room.

of course i told him my concerns with my medication, but he gave me absolutely no suggestions, not even the "go talk to dr. so and so about it" line. highly disappointing. do you think i walked out of there with a botox appointment? well, of course not!

then that day i had quite a bad headache, took quite a few meds to get it under control. soccer jamboree was saturday and that was a crazy day, but i felt so good that that evening we went to leroy and jenny's farm in grays river, took max-ay and tse's friends big daddy p and cooper, had an ABSOLUTE blast.

but, sunday a.m. woke up with a KILLER migraine and i mean killer. maybe it was 'cause i o.d.'ed on chocolate. shoot, i know better than that. soooo stupid! anyway, it picked up speed and the pain was absolutely out of control within a few hours. when my kids are walking around upstairs and i'm in the basement (we have a big house, 2800 sq. ft) and i am writhing in agony from the noise, then wishing i was dead...well, that's just a sign that i'm pretty bad off. duh, right?!

so you can bet that @ 10 a.m. when the clinic opened i was there in quick care looking for the i.v. meds again. unfortunately, one i.v. fluid bag and 3 meds later my pain was tolerable, but still there. i had the hubs take me to my parents (now that's a quiet place) had a bite to eat and took a snooze. probably only 45 min. and took a few more meds before my rest. when i woke up i felt perfect. very tired from all the pain and drugs but no headache. wahoo!

while in quick care the attending dr. had treated me a month ago. first thing she asked was "what's going on with the neurologist". i couldn't even talk for a few minutes because i was crying. she suggested i see a neurologist an hour away. i said good idea but i am more than ready to go to the headache clinic that is 3 hrs. away. she said it was MY decision what i wanted to do and that i should tell my primary care dr. what my decision was. but she HIGHLY suggested i see someone different.

oh, and i forgot to tell you that wonderfully polite neurologist actually asked me (because believe it or not i have improved, but with still unacceptable results) if i wanted to POSTPONE the botox. hello? like i haven't already postponed it? is he a freaking idiot? is he just lazy? does he actually not want to do it and just was seeing if we could bag the idea? since when is 2-3 migraines a week acceptable?

so as you can see, i needed some validation. the last thing i wanted to do is change neurologist. he has only seen me twice and tried one med. but....who is going to advocate for me but me?

so these are the things i've been mulling over. i decided that i am going to e-mail my pc about it and am waiting for my password to come in the mail. also, next week i have an obgyn appointment to talk about the medicine that is treating my menstrual migraines, and have found a new psych to talk about if i can increase the mood stabilizer/migraine med. i am doing all of this because the neurologist had absolutely nothing to say about this and i was hoping that he would give some guidance, imput, suggestions about this.

i mean, like i'm supposed to know what to do .... last time i checked i was the patient....

on another note i started a pain clinic. it meets for 8 weeks and i just had my second meeting yesterday. i am going to try to take as much away from it as i can. the one real interesting/helpful thing i have learned so far is this:

chronic pain, especially over a long period of time, sensitizes the nerves to pain. nerves become "hypersensitive" and are less able to block pain messages that go to the brain. this explains why two people with the same problem experience differences in their pain levels. i have had pain problems since childhood, so obviously my pain blocking capabilities and nerves are fried.

the goal in the pain clinic is to explore different methods of helping the body block these pain messages, identify treatments that at least help, and finally devise a pain management plan. since my pc quit filling my percocet perscription (ok, i admit, i did abuse it...you don't want to hear that story), but it helped when everything else failed.

i am hoping that the clinic will help me learn new and better ways of coping because the ones i invented myself are downright shitty, unhealthy and usually flat out dangerous. i really wish i would have done something like this a long time ago.

new things i am trying:
going walking everyday
deep breathing
guided imagery (relaxation technique)
music therapy
getting fresh air and enjoying the beauty of nature

things i want to try:
accupressure
botox
aromatherapy
biofeedback

i am really hoping that my new psych will refer me to a relaxation class that includes learning biofeedback. the class is an hour away but who the hell cares? i am wanting to go anyway....

so these are the things that have been rolling around in my brain, disturbing me quite a lot and i haven't wanted to talk about them...until now.

so there ya have it!