Showing posts with label neurologist. Show all posts
Showing posts with label neurologist. Show all posts

10.06.2006

Fundraiser for Thai Orphans

i hope my neighbor's feel the same way about the cinnamon rolls they're getting...
These are the cinnamon rolls I made for my neighbor and her family. She helped clean and organize my basement two weekends ago and i am making her dinner, one every thursday night, for 4 weeks. Last night i made breakfast casserole and cinnamon rolls. my cinnamon rolls didn't raise very high, either because i didn't have the dough rising in a big enough bowl or because my yeast was a little old.

anyway, the recipes can be found in february and march '06 archives.

more on the botox update:
i asked the PA neurologist to refer me to someone else for the procedure, since i was sick and tired of dealing with dr. no botox. within a few hours he contacted me to say yes he would, and within 2 days the new clinic called and schedule me for mid november. i didn't mind waiting because 1) i never want to go to dr. no botox's clinic AGAIN, 2) they explained that she does it every other thursday and that was the soonest opening they had.

I like explanations that make sense. I'm reasonable...

This weekend we are traveling 4 hours to Eastern Washington state. my husband's niece Jenny is getting married. she has three kids and this is her first marriage. she is a nice girl and we are excited about sharing this day with her. i'm going to take my camera but try to restrain myself from taking lots of pictures.

last weekend we got a free universal gym (big piece of exercise equipment). I helped Papa D bring it in the house and the thing was frickin' heavy. i think i pulled a muscle in my shoulder because it is really aching. sometimes it hurts pretty bad so i'm trying to take care of it. i really don't need any more problems!

I think all the camera holding and computer keyboarding has added to it as well.

tonight the hubs has taken the kids to one of the local high school's football homecomings. i should have went because my niece is cheerleading for the team and i haven't gone to watch her yet. i'm not going because 1) there's more tidying i want to do before we leave (we are having a past babysitter of ours house/dog sit for the weekend. she cleans houses and i told her to clean mine but i have to do a little first...trust me, i'm still leaving her some disgusting stuff!) 2)i have been trying to avoid my niece's dad (brother-in-law) for some pretty rude comments he's made about my health - to my face and not to my face - so i've been giving him the silent treatment. if i don't see him or talk to him i won't have to deal with the negative feelings i have towards his insensitivity. 3) it's kinda nice to have the house to myself! (even though i tried to guilt papa d into staying and help me clean up the house...)

so there you have it, the latest and greatest to CD's unfolding life.

wait, there's more. i forgot that i haven't mentioned anything about my fundraiser i am doing. i have made a 2007 calendar with some of my best photos. well, May is a picture that Papa D took, but the rest are mine!!

I got a local photo shop to print the calendars for $10 a piece when they usually charge $30. I told them that the proceeds from the sale would go to the needs we will be seeing on our trip to Thailand (with our church) in January '07. I am charging $21 dollars and am hoping to sell 150. so far i have sold 8 and have a few more spoken for.

in a few weeks i'll be taking them to my church to sell some, and i'll print out some flyers that they can give to family/friends in hopes that by word of mouth i will sell more. i may also go to a few businesses and see if i can put some out there.

they are really unique and i'm quite pleased and proud of it. they are printed on matte photo paper and are one-sided, so the photos can be cut out and matted or displayed, whatever, after the month is over. so the prints for each month are beautiful because they are actual photos.

here's what the front and back look like. if you are interested in buying some, e-mail me: cameradawktor@yahoo.com and we'll figure out the shipping. I accept paypal or money order, but can't ship until the money orders have cleared. my paypal account is the same as my e-mail address.

like i said, the proceeds will all go to thai kids that live @ khaodee orphanage, young people going to high school/university that have been orphaned or are from extremely poor families, and/or young women in their early twenties who are attending school for the first time (they would have been sold into prostitutuion). so besides helping out w/ food, clothing and shelter, it looks like some will also be going to education.

our trip is january 8-18 and i will obviously be photo documenting the trip and also the distrubution of the money I'm raising. if this calendar idea goes well, i will probably do a 2008 calendar w/ the photos of thailand and the kids, with the proceeds of that going back to them as well.

Here's a peak of what they look like. One calendar is 8oz. so shipping will not be too bad.
Calendar Benefitting Orphaned Thai Children
inside of the calendar benefitting orphaned thai children
This is the first time that any of my photos have been for sale. and even though i am not profiting from it, i'm hoping it will encourage me to begin marketing my work. i love photography and have found it to be so extremely therapeutic. i'm even encouraging an old high school classmate of mine, who used to be in photography with me, to pick up the camera again. her family is going through an extremely difficult time and i'm encouraging her to capture the beautiful moments in life, in order to remember that there is still good in the world....

9.16.2006

little update



I've been waiting for my secure password to come in the mail from my health insurance company and yesterday it arrived. wahoo!

I e-mailed my pc about the neurologist dillema and asked for him to refer me to the headache clinic 3 hrs. away and in the meantime, while i'm waiting for the appointment, to let me go to a different neurologist to do the botox.

wish me luck!

there is absolutely no reason that he should say no to me. i think he's great, and am sure there won't be a problem.

but....

*(because there's always a but)

but....if he says no, well then i'll see if that quick care dr. is taking new patients and see her. if i can't i'll ask her who to see and see that person.

thanks for your support everyone!

yesterday i had a pretty bad headache all day. i took some meds for it and it just wasn't doing much for me. but i started applying some of the things i've been learning in the pain clinic. it seemed like i was "managing" myself all day, but it kept the pain to a tolerable level, and when it got bad, and i implimented something i learned, it simmered down for a while.

these tools didn't fix me, but they sure helped me cope. i have a feeling i might have ended up in quick care again if i hadn't tried some of these things.

i used ice for 10-15 min. at a time, waited an hour, then reapplied.

i used tiger balm, like stinking all day, and am sure smelt quite like a tiger by the evening.

i used guided imagery about 5x for 20 min. sessions each. this helped a lot and i think was the biggest help to me of the day.

i started my day off with fresh air and walk even though i was hurting.

i tried deep breathing about as many times as i could remember to do it.

the worst thing for me was going to pick up tse from school and running two errands. i knew i shouldn't do it, but did it anyway. i had been able to keep the pain down, but by the last stop, it really started to skyrocket and was much harder to manage after that.

guess i shouldn't let any reason be an excuse to overdo it on days like that. it's just that, sometimes, maybe it's pride, but you want to be like those people who just push through things and get things done. but it sure wasn't smart for me yesterday, and none of the reasons were good enough to do what it ended up doing to me.

lessons learned~

9.14.2006

o.k., so i haven't posted in a while...



well, doesn't seem like anyone reads this anymore. maybe 'cause i haven't been good about checking anyone else's blog.

i've just been spending the bulk of my time on photography...surprise anyone?!

so, i haven't posted in a while. want to know why that is?

well, last friday i saw the neurologist. the one i'm waiting on for botox. the one i've waited 3 mos. to see. guess how long he spent talking to me?...

you probably guessed right...less than ten minutes. i was so shocked when he got up and shook my hand that i let him just walk right out of the room.

of course i told him my concerns with my medication, but he gave me absolutely no suggestions, not even the "go talk to dr. so and so about it" line. highly disappointing. do you think i walked out of there with a botox appointment? well, of course not!

then that day i had quite a bad headache, took quite a few meds to get it under control. soccer jamboree was saturday and that was a crazy day, but i felt so good that that evening we went to leroy and jenny's farm in grays river, took max-ay and tse's friends big daddy p and cooper, had an ABSOLUTE blast.

but, sunday a.m. woke up with a KILLER migraine and i mean killer. maybe it was 'cause i o.d.'ed on chocolate. shoot, i know better than that. soooo stupid! anyway, it picked up speed and the pain was absolutely out of control within a few hours. when my kids are walking around upstairs and i'm in the basement (we have a big house, 2800 sq. ft) and i am writhing in agony from the noise, then wishing i was dead...well, that's just a sign that i'm pretty bad off. duh, right?!

so you can bet that @ 10 a.m. when the clinic opened i was there in quick care looking for the i.v. meds again. unfortunately, one i.v. fluid bag and 3 meds later my pain was tolerable, but still there. i had the hubs take me to my parents (now that's a quiet place) had a bite to eat and took a snooze. probably only 45 min. and took a few more meds before my rest. when i woke up i felt perfect. very tired from all the pain and drugs but no headache. wahoo!

while in quick care the attending dr. had treated me a month ago. first thing she asked was "what's going on with the neurologist". i couldn't even talk for a few minutes because i was crying. she suggested i see a neurologist an hour away. i said good idea but i am more than ready to go to the headache clinic that is 3 hrs. away. she said it was MY decision what i wanted to do and that i should tell my primary care dr. what my decision was. but she HIGHLY suggested i see someone different.

oh, and i forgot to tell you that wonderfully polite neurologist actually asked me (because believe it or not i have improved, but with still unacceptable results) if i wanted to POSTPONE the botox. hello? like i haven't already postponed it? is he a freaking idiot? is he just lazy? does he actually not want to do it and just was seeing if we could bag the idea? since when is 2-3 migraines a week acceptable?

so as you can see, i needed some validation. the last thing i wanted to do is change neurologist. he has only seen me twice and tried one med. but....who is going to advocate for me but me?

so these are the things i've been mulling over. i decided that i am going to e-mail my pc about it and am waiting for my password to come in the mail. also, next week i have an obgyn appointment to talk about the medicine that is treating my menstrual migraines, and have found a new psych to talk about if i can increase the mood stabilizer/migraine med. i am doing all of this because the neurologist had absolutely nothing to say about this and i was hoping that he would give some guidance, imput, suggestions about this.

i mean, like i'm supposed to know what to do .... last time i checked i was the patient....

on another note i started a pain clinic. it meets for 8 weeks and i just had my second meeting yesterday. i am going to try to take as much away from it as i can. the one real interesting/helpful thing i have learned so far is this:

chronic pain, especially over a long period of time, sensitizes the nerves to pain. nerves become "hypersensitive" and are less able to block pain messages that go to the brain. this explains why two people with the same problem experience differences in their pain levels. i have had pain problems since childhood, so obviously my pain blocking capabilities and nerves are fried.

the goal in the pain clinic is to explore different methods of helping the body block these pain messages, identify treatments that at least help, and finally devise a pain management plan. since my pc quit filling my percocet perscription (ok, i admit, i did abuse it...you don't want to hear that story), but it helped when everything else failed.

i am hoping that the clinic will help me learn new and better ways of coping because the ones i invented myself are downright shitty, unhealthy and usually flat out dangerous. i really wish i would have done something like this a long time ago.

new things i am trying:
going walking everyday
deep breathing
guided imagery (relaxation technique)
music therapy
getting fresh air and enjoying the beauty of nature

things i want to try:
accupressure
botox
aromatherapy
biofeedback

i am really hoping that my new psych will refer me to a relaxation class that includes learning biofeedback. the class is an hour away but who the hell cares? i am wanting to go anyway....

so these are the things that have been rolling around in my brain, disturbing me quite a lot and i haven't wanted to talk about them...until now.

so there ya have it!